A normal life can mean any number of things to any number of people. For my son Taylor, a normal life basically means being able to do all of the same things that other kids his age are able to do while managing his Type 1 diabetes. Since his diagnosis about a year and a half ago, we’ve tried to keep Taylor active and doing most of the same things as he did before he was diagnosed.
Since his diagnosis, Taylor has continued to play tennis and soccer. I think I’ve talked him into giving basketball a try again. He loves to go swimming and is still learning. All of these activities are fun to watch him participate in, but it also requires a lot of work. His blood sugar levels have to be monitored during these activities. That has been made much easier since he’s gotten his Dexcom, a continuous glucose monitor. If he’s too low, he has to eat a snack or drink until his numbers go up. If he’s too high, he can either drink lots of fluids and/or take insulin to get his numbers down. It’s pretty much a balancing act that has to be monitored and it’s never really easy. He’s just now getting to the point where he understands what it feels like to have low blood sugar levels.
Recently, Taylor learned how to ride his bike. Given that he’s not exactly the bravest kid on the face of the Earth, this is a pretty big deal in my book. I love riding my own bike and I look forward to being able to take Taylor out for bike rides with me. We’re working on it, but it’s not easy. Just last night we were riding to the end of the street and back and his number dropped fairly low, very quickly. With his diabetes, it’s always a learning process and never really the same every day.
After Taylor’s diagnosis last year, we decided to form a team for the JDRF One Walk. JDRF’s mission is to accelerate life-changing breakthroughs to cure, prevent, and treat Type 1 diabetes and its complications.
In recognition of my birthday this year, I would like to ask you to make a donation to Taylor’s JDRF Walk team. For every 1 dollar that is donated for my birthday this year, I will ride no less than 1 mile on my own bike (taking Taylor with me for as many of them as possible) before the walk which will be held on September 28, 2019 at Commonwealth Stadium here in Lexington. I will post all activity towards the total so you can see how far your dollars are going.
I don’t know if a cure for diabetes will ever be found, but I would like to hope that all of our efforts to help raise money for this cause won’t be done in vain. Any and all donations, no matter how big or small, would be greatly appreciated. Thank you very much!
5/8/2018 12:36 pm
The morning of Monday January 8, 2018 started off like any typical snow day….no school. By lunch time, that day had taken a pretty big turn from the normal routine.
For a couple of weeks prior, my wife and I had expected that our 5 year old son, Taylor, had something wrong with him. He was literally drinking nonstop and was acting much out of the ordinary. Naturally, we Googled all of his symptoms and type 1 diabetes kept coming up. My knowledge of type 1 diabetes at the time was pretty limited. I only really knew of a couple of people that had it and I knew it was rare. Even though the symptoms were there, I reminded myself that I’m not a doctor and pretty much figured, “Type 1 diabetes is pretty rare, Taylor doesn’t have that.” I couldn’t have been more wrong.
After school was canceled that morning, I decided to go ahead and take Taylor to the doctor. I don’t recall exactly what the doctor said. Something along the lines of, “It looks like type 1 diabetes,” “Take him to the 3rd floor of the UK Children’s Hospital, you might be there for a couple of days.”
Taylor spent a couple of nights in the hospital and his world was completely flipped upside down. The little kid with a big smile who loved treats and fruit punch and was deathly scared of needles, suddenly had to learn to live with type 1 diabetes. As his family, we’ve had to learn how to live with it as well.
Taylor is really an amazing kid. With all of these new adjustments to his life, he’s handled them like a champ. The kid who loves treats? He can still have them…..just has to plan them carefully. Fruit punch? Not anymore. Scared of needles? Takes 4 shots a day and doesn’t even bat an eye.
No matter how great his attitude has been (and it’s been great) I’ve still heard Taylor say, “Daddy, I don’t want to have diabetes anymore.” As you can probably imagine, hearing that absolutely breaks your heart. If there is anything in this world that I could do right now, I would cure his diabetes. Since I can't Taylor will probably live with diabetes for the rest of his life.
The only real thing that I know I can do in order to help find a cure for type 1 diabetes is to help raise money for the Juvenile Diabetes Research Foundation (JDRF). We’ve started a JDRF One Walk team (Taylor’s Tribe) in order to advance this goal and help Taylor realize that there are a lot of people in his corner. If you’re the type of person that likes to make charitable (and tax deductible) donations. Please consider donating to Taylor’s Tribe. Any donation, big or small, would be greatly appreciated. Thank you very much!
11/13/2017 8:15 AM
So, it’s getting closer to the end of the semester. You’re sitting there looking at your grades and thinking, “Hey, it’s not going too well for me right now.” Here’s a few tips for you to get yourself back on the right track before it’s much too late this semester:
Whatever you do, don’t give up. You still have time left, but time is running out.